Rebecca Callaghan faced a challenging pregnancy in 2012 when doctors decided to induce labor early due to excess fluid around her baby.
It wasn’t until about an hour after Matilda was born that any issues were suspected. Initially, a large blue mark on her face and extending down her body was mistaken for a bruise. However, just 30 minutes later, doctors informed Rebecca and her husband that it was, in fact, a birthmark.
Two weeks postpartum, Matilda was diagnosed with Sturge-Weber syndrome, a rare neurological condition associated with skin abnormalities that can lead to paralysis, learning difficulties, and seizures.
Matilda’s health quickly deteriorated, necessitating her transfer to Alder Hey Children’s Hospital in Liverpool, England. The parents’ joy transformed into deep anxiety, as they feared they might lose their newborn. “We couldn’t travel with her because she was so sick. Watching her taken away, we were terrified we’d never see her again”, her father shared with the Daily Mail.
Adding to their worries, they discovered Matilda had two heart defects. Despite the grim prognosis, she displayed remarkable resilience, successfully undergoing surgery. She also began laser treatments to address her unusual birthmark, a process that could take up to 16 hours to fully fade.
“She receives treatments every two months. The laser leaves her skin red and covered in blisters, which eventually heal”, her father, Paul, explained in a 2016 interview. He recounted the misconceptions from others, stating: “People assume we’ve somehow harmed her”.
Although these treatments are painful, Matilda is a cheerful child. Sadly, many stare at her or make hurtful remarks, even asking if her parents had caused her birthmark by allowing her to burn herself. “They only see the surface and make judgments. I wish they could see beyond the mole to the beautiful person she is”, Paul lamented.
In addition to her birthmark, Matilda faces vision challenges and struggles to walk. Yet, with the help of specialized equipment, she has taken steps on her own.
Despite her struggles, Matilda remains upbeat and resilient. “She’s incredibly stubborn; she’ll do things her way or not at all!” her father noted, emphasizing that she always greets others with a smile. The family regularly confronts stares, insults, and teasing, but they remain proud of Matilda. “Despite everything, she’s thriving”, her father said.
Now nine years old, Matilda’s family recently shared an updated photo of her in her wheelchair in June 2019. They have set up a fundraising page to raise £5,000 for a new wheelchair, enabling Matilda to enjoy her favorite activity: spending time outdoors, away from crowds. “We want to help her continue doing what she loves”, the page states.
9 People Who Were Too Unlucky to Have a Good Vacation
Sometimes when your suitcases have been packed, your passport is in your pocket and the plane tickets are in your hands, you get a gut feeling that something is going to go wrong on your vacation. You’ll end up trying to remember whether you switched off the iron back at home or are suffering after realizing you’ve forgotten your phone charger. All these bad moments can be amplified thanks to friends that post their perfect beach photos.
9. What happens when you fall asleep outside:
8. “Came to Greece for a relaxing holiday in the sun. It has rained for 5 days straight, and we are leaving tomorrow.”
7. “The hotel promised us a sea-view room. They actually weren’t lying.”
5. When one obstacle has passed, but it’s still too early to relax:
4. “How’s that for an ocean view on your beach vacation?”
2. “When you wake up for a sunrise at Niagara Falls but forgot to check the weather forecast…”
1. When you’re having your first romantic trip on gondolas, but the traffic is too heavy:
Has anything similar happened to you? Please tell us your stories in the comments and perhaps our next compilation will be about you!
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