When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
My Stepmom Covertly Called Off My Prom Hair Appointment to Spoil My Evening – Yet She Was Stunned When a Limousine Arrived for Me
Yeah, that woman cannot stand me.
It all started 7 years ago, after my mom passed away from a cold that just wouldn’t go away. Before I knew it, my dad was seeing Carla, and a year later, he married her.
“Your father doesn’t waste any time, does he?” my aunt sniffed on the day of the wedding. “And who is Carla anyway? She’s nothing compared to your mom!”
Carla was fine at first. I mean, she tried hard to get me on her side. But slowly, the passive-aggressive jabs started piling up. I remember once, I caught her staring at me.
“You look too much like your mother, Emily,” she said. “It actually pains me to look at you. No wonder your father gives Mason more attention. He’s closer to Mason right now, isn’t he?”
I sighed and ignored her, trying not to let her words get to me.
My dad, of course, didn’t notice a thing. It was like he couldn’t—or just wouldn’t—see how Carla treated me. And she loved that. She loved being the only one ready to taunt me.
Anyway, fast forward to prom season. Like every other girl in my class, I was dreaming of the perfect night. I saved up enough babysitting money for months to buy a gorgeous violet dress.
I couldn’t help but wish that my mother was around to spend these moments with me.
But that’s why I chose the violet dress. It was her favorite color.
Prom was going to be my night. I just knew it.
Whenever I thought about it, I just felt like something magical was going to happen at prom. To make myself feel even better, I booked a hair appointment at a fancy salon. All my friends were going there too.
Everything was set.
But then the big day came, and Carla made sure to ruin it.
I went to the salon, all excited, but when I got there, the receptionist looked at me, confused.
“Emily? Are you sure?” she asked, looking at her computer screen. “Zelda told me that you canceled?”
“I didn’t!” I exclaimed. “Why would I? Prom is this evening!”
“Calm down, honey,” the receptionist said. “I’ll get Zelda.”
I waited impatiently while she went to get the hairdresser. Finally, they returned.
The hairdresser looked uncomfortable.
“I got a call earlier today saying that you wanted to cancel your appointment, Emily. I assumed that it was your Mom?”
My heart dropped. Canceled? How? I didn’t cancel it! What mom?
I was still processing everything when I looked over and saw her.
Carla.
Sitting there, getting her hair done. Of course.
She saw me and just smirked, her eyes cold as steel. Carla had canceled my appointment.
“Is there any way that you could still schedule me in?” I asked Zelda.
She shook her head sadly.
“I’m sorry,” she said. “When your appointment was canceled, a woman called in and booked her own. All of our slots are taken. I’m sorry, honey.”
I stood there in shock. So, Carla had called pretending to be me? Pretending to be my mom? And then she took my appointment so that she could watch me be disappointed?
Sick.
I barely managed to keep it together as I ran out of the salon, my head spinning. I felt nauseous.
My perfect prom? It was just falling apart around me. By the time I got home, I locked myself in my room, tears pouring down my face.
I sat at my dressing table trying to fix my hair on my own, but nothing looked good. I felt stupid for telling Carla my plans in passing.
See what had happened?
I looked at my dress, hanging off a hanger.
I wasn’t even sure that I wanted to go to prom anymore.
I sat there, looking at my makeup sitting on my dressing table and wondered if it was even worth it. I mean, what was the point? I was already upset and didn’t feel like anything good was going to come from this.
Suddenly, I heard this loud honking outside. I ignored it at first, thinking it was just a random car.
A teenage girl’s dressing table | Source: Midjourney
A teenage girl’s dressing table | Source: Midjourney
But it didn’t stop.
I wiped my eyes with the back of my hand and dragged myself to the window, fully expecting to see commotion on the road. But when I looked out, my jaw dropped.
A glossy black limousine was parked in front of our house.
I thought it was some sort of mistake. There was no way that the car was for me. My friends’ parents had said no when we first talked about it months ago. But still, I ran downstairs.
I stood at the doorway, waiting for something to happen. The driver stepped out and walked up to our front door. My dad, who had been as clueless as ever during all of this, stood on our porch, looking as confused as I felt.
“I’m here for Miss Emily, sir,” the driver said, holding out a small card.
Miss Emily? Me?
“She’s right here,” my dad said, nodding to me.
I hesitantly took the card from my dad’s hand and opened it. Inside, written in neat handwriting, were the words:
To my beautiful sister, Emily. I know you’ve had a rough time lately, but you deserve the best night ever! Enjoy the limo, and don’t worry about a thing. I’ve been saving all my birthday and Christmas money.
Have a magical night, sis.
Love, Mason.
Mason? My 11-year-old brother did this?
I burst into tears all over again, but this time from pure shock and gratitude. I ran upstairs to find Mason in his room, grinning like he’d just pulled off the ultimate prank.
“I heard Mom on the phone this morning,” he said, shrugging like this wasn’t a big deal. “I knew that it wasn’t fair at all.”
Turns out that he had overheard Carla canceling my hair appointment, and in true little brother fashion, took matters into his own hands.
“But did you really use your money?” I asked him, feeling horrible.
“Not really,” he grinned. “See, Mom has been saving up money to buy some fancy diamond necklace. She’s been showing Dad the necklace, hoping that he would get it for her. But he said no.”
Good for you, Dad, I thought.
“Anyway, after I heard her phone call, she left home. So, I took some of the money from her stash, and went to Mr. Johnson next door. He owns the limo company, remember?”
But Mason didn’t stop there.
“There’s more, Em,” he said. “Mrs. Evans, from across the road? Her daughter is a stylist at the mall. She’s coming here to do your hair and makeup soon.”
Just as the words left his mouth, the doorbell rang.
“That should be her!” Mason said. “Go wash your face, I’ll send her up.”
When did Mason grow up? I wondered as I did what he said.
Twenty minutes later, I went from crying in my bedroom to looking like a princess. I just wished my mom was around to fuss over me. To take endless photos and tell me how proud she was of me. I wanted a hug from her more than anything.
But still, Mason had saved prom!
When Carla drove into our driveway, I was already outside, stepping into the limo like a movie star. Her jaw dropped. And she got out of the car and just stood there, stunned.
Her face? Oh my God. I wish I had a picture of her expression. I would have stuck it on my mirror!
“Richard? Did you do this?” I heard her shriek to my father before the driver closed the door.
Moments later, the driver whisked me away.
Prom was everything I had hoped for. When I arrived at the hall in the limo, heads turned. I was glowing, and I knew it. For the first time in a long time, I felt like my mom was right there with me.
The whole night was pure magic. Dancing, laughing with my friends, and just forgetting all the drama at home.
As for Carla, I hope she learned a lesson. You can’t mess with someone’s joy and get away with it… especially if your son is going to come in and save the day!
What would you have done?
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