Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
Preview photo credit A True Story / Youtube
Rising Music Sensation Nell Smith Passes Away at Just 17 After Collaborating with The Flaming Lips
The death of young musician Nell Smith has left a deep impact on both the music world and the public. At just 17, Nell passed away on Saturday night, October 5, in British Columbia. Along with her family, many well-known musicians have expressed their sadness and shock over her sudden death.
Nell was about to release her first solo album next year. The album, which she recorded in Brighton, was going to be released by Bella Union, an independent record label. Despite her young age, she had already achieved a lot in her music career. Her passing happened just as her career was set to soar.
Simon Raymonde, co-owner of Bella Union and the producer of Nell’s upcoming album, shared his grief on Instagram. He posted photos of Nell, along with a heartfelt message. The photos were given to him by Nell’s family and musician Warren Ellis. One of the images showed Nell and her brother, Ike, in a tender family moment. Another picture showed Nell standing on a beach, deep in thought, with her guitar. Simon mentioned this was taken when she wrote one of her first songs on Vancouver Island.
There were also photos of Nell with The Flaming Lips’ lead singer, Wayne Coyne, who she had collaborated with on a project in 2021. Another image captured the moment Nell saw her blue vinyl record “Where The Viaduct Looms” for the first time, her smile showing how proud she was of her work.
Simon’s last photo showed Nell and Warren Ellis sharing a close moment, with Nell wrapping her arms around the musician. Warren held what looked like Nell’s mixtape, a symbol of her early passion for music.
In his post, Simon expressed that, out of respect for Nell’s family, he couldn’t share more details at the time. He spoke about her talent and the incredible things she had already accomplished as a young artist.
Nell’s family also shared their sadness on Instagram. They posted a series of photos, remembering special moments they had shared with Nell. Alongside the photos, they wrote a heartfelt message: “Our feisty, talented, unique, beautiful daughter was taken from us too soon. We are heartbroken and don’t know what to do or say.” They added that while Nell had so much more to give to the world, they were thankful for all she had experienced in her 17 years. Her family asked for privacy as they dealt with the tragedy, signing off with their names: Jude, Rachel, Jed, and Ike.
Music producer Howard Redekopp, who had worked with Nell on her upcoming album, also shared a tribute on social media. Posting photos of the two of them, Howard wrote about how much he valued the time they spent together, even though it was brief. He praised Nell as a rare and extraordinary talent, and shared how heartbroken he was that she wouldn’t be able to see the lasting influence her music would have. He ended his post by sending love to Nell’s family and friends.
Musician Micah Nelson, son of the legendary Willie Nelson, also paid tribute to Nell on Instagram. He shared images of the two of them playing music together and wrote about the tragedy of her passing. He described Nell as a bright and talented person, full of promise, and shared his sympathy with her family.
Fans have also reacted strongly to the news of Nell’s passing. One fan, posting on Threads, shared a photo from a recent Flaming Lips concert in Portland where the band’s lead singer Wayne Coyne had announced her death. The fan mentioned that Nell had died in a car accident.
A video clip from the concert showed Wayne Coyne breaking the sad news to the audience. He spoke emotionally about his relationship with Nell and their work together on the album “Where The Viaduct Looms.” Wayne struggled to hold back tears as he told the crowd that Nell had died the night before. The audience responded with cheers of love and support, as Wayne reflected on the importance of music and the people we love.
Nell’s connection with The Flaming Lips began in 2018 when she attended one of their concerts. She managed to get a letter to the band on their tour bus, which caught Wayne’s attention. From there, he stayed in contact with Nell’s parents as she began learning to play guitar. By the time she was 11, Nell was performing live, writing her own music, and playing alongside other well-known artists.
Rest in peace, Nell. Our thoughts are with her family, friends, and everyone who knew and loved her during this difficult time.
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