Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
I Decided to Surprise My Husband at Work Only to Discover He Was on Vacation
I planned to surprise my husband at work with lunch, but instead found out he was on vacation. Confused and suspicious, I followed him the next day and uncovered a shocking secret at my sister’s house. What I found left me questioning everything I thought I knew about my marriage and my family.
I decided to surprise Ben at work with lunch last Tuesday. I’d spent the morning making his favorite — lasagna. With the kids at school, I had some time to myself, and I thought it’d be a sweet gesture. I mean, what husband wouldn’t love a surprise visit from his wife with homemade food, right?
When I arrived at his office, the receptionist gave me a puzzled look.
“You’re here for Ben?” she asked, glancing at the lasagna in my hands.
“Yeah, just wanted to bring him lunch. Is he in?”
She hesitated. “Ben’s been on vacation for the past two weeks.”
I stood there, stunned, trying to process what she’d said. Vacation? He’d told me he was working late all week. My stomach twisted, and I felt a cold sweat break out on my forehead. I thanked her and left.
At home, I tried to make sense of it. Maybe it was a misunderstanding. But what kind of misunderstanding lasts two weeks? I couldn’t shake the feeling that something was terribly wrong. So, I did what any suspicious wife might do — I decided to follow him the next day.
The next morning, I called Mom and asked her to take the kids for the day. I told her I had some errands to run. She was happy to help, oblivious to the turmoil brewing in my head. I then followed Ben to find out what was really going on.
I watched as he left the house and got into his car, and I followed at a safe distance. He drove across town and pulled up to Kate’s house — my sister’s house.
My mouth went dry as I watched him get out of the car. Kate came out, smiling warmly as she embraced him and led him inside.
My mind went blank. Was Ben having an affair with my sister? I couldn’t believe it, but what else could explain it? The pain of betrayal cut deep, and I felt tears welling up. I had to know for sure.
I parked my car a few houses down from Kate’s place and called Carla, my lawyer. She’d handled a few legal matters for us before, and I trusted her judgment. I told her everything, my voice trembling with anger and hurt.
“Julia,” Carla said, her tone calm and professional, “before you jump to conclusions, gather some concrete evidence. It’s important to be sure before taking any legal steps.”
I knew she was right. So, I went back to Kate’s house, lurking around like some sort of spy. I felt ridiculous, but I had to know the truth. I peered through a window, careful not to be seen.
Inside, I saw Ben and Kate sitting at the kitchen table, huddled over lunch, and a pile of papers. They looked serious, and every now and then, they’d glance around, as if worried about being caught.
What were they plotting? The more I watched, the more convinced I became that something was terribly wrong. It wasn’t just an affair — they were planning something.
I snapped a few photos with my phone, my hands shaking. I needed proof, something concrete to confront Ben with. My mind raced with all sorts of terrible scenarios. What were they up to?
I called James from my car. He picked up on the first ring. James, my brother-in-law, had always been the sensible one in the family. Married to Kate for nearly a decade, he was the calm, rational counterpoint to her more impulsive nature.
He and Ben got along well, often bonding over their shared love of sports and grilling. I trusted James, and if anyone could help me make sense of this, it was him.
“James, it’s Julia. I need to talk to you about Ben and Kate.”
There was a pause. “Julia, calm down. What’s going on?”
“I think they’re having an affair,” I blurted out, my voice shaking.
James sighed. “Julia, you need to come over here. Now.”
I hurried back to Kate’s house, my mind spinning with fear and betrayal. When I arrived, I saw James’ car already parked outside. I crept up to the house and peeked through the window again. James was there, sitting with Ben and Kate at the kitchen table.
I could hear snippets of their conversation through the half-open window.
“Julia called me,” James said, sounding concerned. “She’s worried sick, thinks you two are having an affair.”
Ben nodded. “So, she is unaware of everything.”
“That’s great!” Kate replied, her tone filled with excitement.
“Our plan is working,” Ben added.
My heart shattered. I had heard enough. I barged into the house, my anger boiling over.
“You lying, cheating traitors! How could you do this to me?”
Kate and Ben looked at me, stunned. James stood up, trying to calm me down.
“Julia, please, let us explain.”
“Explain what? That my husband is cheating on me with my sister?” I screamed, tears streaming down my face.
“Julia, it’s not what you think,” Ben said softly, trying to calm me down. “I took a vacation to work on a surprise for you.”
I laughed bitterly. “A surprise? Meeting at Kate’s house every day is a surprise?”
“Yes,” Ben said, his voice steady. “I was planning to make your dream come true. You always talked about owning a coffee shop, right?”
I blinked, not understanding. “What?”
Kate stepped forward, holding a stack of papers. “Ben has been using his inheritance to buy a coffee shop for you. We’ve been working on the business plan and all the legal paperwork here.”
My anger started to wane, replaced by confusion and a glimmer of hope. “A coffee shop? For me?”
Ben nodded, pulling out a folder and handing it to me. “Look, these are the documents. The lease, the renovation plans, everything. I wanted it to be perfect before I told you. James and Kate are co-investors, so I wanted to make sure they are completely onboard.”
I looked at the papers, the words blurring through my tears. It was all there. The proof of his love and dedication, the coffee shop I had always dreamed of. My knees buckled, and Ben caught me before I fell.
“Oh my goodness, Ben… I’m so sorry. I thought… I thought you were…”
“I know,” he said, hugging me tightly. “I should have told you, but I wanted it to be a surprise. I wanted to see your face when I handed you the keys.”
“I’m such an idiot,” I sobbed into his chest. “I’m so sorry.”
“Shh, it’s okay. I understand why you felt that way. But Julia, I love you. I would never betray you.”
I nodded, feeling the weight of my mistake. “Thank you, Ben. Thank you for everything.”
The next day, we went to sign the final papers. The coffee shop was ours. I could hardly believe it. As I walked into the quaint little space, the smell of freshly baked goods already filling the air, I felt so joyful.
Ben squeezed my hand. “This is all for you, babe. I believe in you.”
I smiled, tears of happiness streaming down my face. “I love you, love. Thank you for believing in me.”
We worked together, turning the coffee shop into something magical. It became a place where dreams were baked into reality, where love and trust were the secret ingredients in every recipe.
Looking back, I realized how important trust and communication are in a relationship. Misunderstandings can happen, but it’s how we handle them that truly matters.
As I stood in my coffee shop, surrounded by the aroma of freshly baked goods, I felt grateful for Ben’s unwavering love and support. We had faced a storm, and together, we had come out stronger.
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