Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
My Cousin Brags about Her ‘Achievements’ Despite Owing Me $5,000 – I Thought About Taking Action, but Karma Took Care of It for Me
When my cousin crashed our rental car, leaving me with a $5,000 bill, I spent months trying to get her to pay me back. Just as I gave up, I saw her flaunting her ‘success’ on social media and discovered I wasn’t the only one she owed. Karma caught up to her, and I got a front-row seat!
It’s been a year since that disastrous West Coast holiday, and I still feel the sting of that $5,000 debt. My cousin Debra, who’s supposed to be an accountant, racked up a huge damage charge on our rental car and then had the audacity to act like it wasn’t her problem.
It was under my name, so guess who got stuck with the bill? That’s right, me. Lisa, the ever-reliable project manager from Boston. I swear, some days I think my middle name should be “Doormat.”
I remember that holiday like it was yesterday. Seven of us cousins decided to get together for some “family bonding” out on the West Coast.
Debra was there, of course, with her charismatic charm and reckless attitude. One evening, she decided it would be a fantastic idea to drive the rental car down a narrow, winding coastal road at night.
The air was crisp, the moonlight casting eerie shadows as she sped along the road, ignoring my pleas to slow down.
“Come on, Lisa, live a little!” Debra laughed, her voice filled with reckless glee.
She cranked up the music and took another swig from her bottle. I clutched the seat, my knuckles white.
“Debra, please, you’re going too fast!” I yelled, my heart pounding.
She just laughed harder, taking a sharp turn way too quickly. My heart stopped as the car skidded toward the edge, tires screeching.
I thought we were all going to die that night, but the guardrail saved us. The impact when we slammed into it was jarring, leaving us all stunned and the car a complete wreck.
The holiday mood? Completely ruined.
When the rental company slapped a $5,000 damage charge on the car, Debra just shrugged.
“We’re family,” she said with a flippant wave of her hand. “We should all pitch in.”
The other cousins mumbled vague agreements.
“Maybe we can split it evenly,” suggested Jimmy, the peacemaker of the group.
“Split it? Are you kidding? I wasn’t even in the car,” retorted Martha, crossing her arms.
“I can’t afford that right now,” mumbled Jake, avoiding eye contact.
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