A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

She was expected to be Hollywood’s biggest star. But then everything changed tragically

Sharon Marie Tate’s story began on January 24, 1943, in the heart of Texas. The eldest of three daughters, she grew up in a military family, moving from city to city, each new place adding a layer to her intriguing persona.

As a child, Sharon was a beacon of beauty and grace, traits that would later define her career. By the time she was 16, she had already earned her first title, “Miss Richland,” hinting at the stardom that lay ahead.

The Hollywood Dream

Sharon’s journey to Hollywood wasn’t a simple leap; it was a series of calculated steps. Moving to Los Angeles in 1961, she started with small roles in television series like “The Beverly Hillbillies” and “The Man from U.N.C.L.E.” But it was her role in the 1967 film “Valley of the Dolls” that truly showcased her talent and charisma.

Audiences were captivated by her ethereal beauty and on-screen presence. Films like “The Fearless Vampire Killers,” directed by her future husband Roman Polanski, and “Don’t Make Waves” solidified her place in Hollywood.

Marriage to Roman Polanski and Glamour

Sharon Tate’s life was a blend of Hollywood glamour and personal charm. She met Roman Polanski in 1964 on the set of “The Fearless Vampire Killers.” Their connection was instant, and they married in a picturesque ceremony in London on January 20, 1968.

Their relationship was a whirlwind of passion, creativity, and mutual admiration, often described as a modern-day fairytale amidst the glitz of Hollywood. They say Sharon always liked shorter and plump guys. Some say it was like that because she wanted to be worshiped by her lovers.

A Dark Night in Hollywood

The fairytale, however, was tragically short-lived. On August 9, 1969, the world was rocked by the news of Sharon Tate’s brutal murder. Eight months pregnant, Sharon and four others were killed by members of the Manson Family in her Los Angeles home. This act of senseless violence not only ended her life but also marked a dark chapter in Hollywood history.

The Manson Family, led by the deranged Charles Manson, targeted Sharon’s home due to its previous occupant, a record producer who had spurned Manson. The horrific event shattered the peace of the 1960s, leaving an indelible scar on the collective memory of the nation.

She was expected to be even bigger than Marilyn Monroe and other Hollywood stars at the time. Her life was taken so early and we were deprived of an amazing and young aspiring actress.

An Enduring Legacy

Sharon Tate’s life, though tragically brief, continues to resonate deeply in popular culture. Her performances, particularly in “Valley of the Dolls,” have immortalized her as a symbol of beauty and talent cut short.

Tarantino sought to capture her essence as a vibrant, kind-hearted individual whose life was filled with promise and joy. The film received critical acclaim and reintroduced Sharon to a new generation, ensuring that her legacy as a beloved actress and a symbol of lost potential endures​.

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