Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
The girls visit their dad’s grave to “show” him their new dresses as he had wished, only to find two boxes with their names on them
To honor their father’s dying wish, two little girls, Isla, 6, and Madison, 8, visit his grave on his birthday, dressed in beautiful outfits just for him. Near his gravestone, they find two wrapped boxes with their names on them.
Since Brian’s passing, Isla and Madison had been quieter, missing the fun moments they shared with him. Linda, their mother, struggled with grief, finding it difficult to move on. Brian’s last words to his daughters were a wish to see them dressed in their finest on his birthday, and, though hesitant, Linda took them shopping so they could fulfill his request.
On Brian’s birthday, the girls, holding hands, walk to his grave with Linda trailing behind. At the grave, they find gifts labeled with their names, each containing a pair of Mary Janes and a heartfelt letter from Brian. In the letter, he encourages them to be happy, mischievous, and to remember he is always with them.
As the girls read the letter, Linda finally feels peace, comforted by her daughters’ love and resilience. Through their visit, the family feels Brian’s presence, realizing that love and cherished memories keep them connected, no matter the distance.
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